Tuesday, June 23, 2009

Almost done packing!

We have one more room to pack and then we are done!!Then tomorrow is the day we move everything and then Thursday we clean. This has been so hard on us because we will not have our own house at the end of this move. I tried so hard to find something and had no luck.My sister did call and told me a friend has a place he is renting and he would work with us so we are hoping to get in there next week. I guess it is very nice. So we are really praying we get it.Thank you to all that care about us!

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Monday, June 22, 2009

Moving Stinks!!



We have to be out by Thursday at 6pm and moving stinks!We still do not have any where to live so we are basically homeless Joy! I am so hoping that something will come to us soon!I do not want to live with my mom! I haven't lived with her since 15 and was not planning to ever live with her again!! What a mess! You may not hear from me for awhile because I will not have the net so please keep praying and I will update as much as I can!Know I think and pray for you all often. I will miss the release I get from blogging when I am upset.Why dose this have to happen to us?? Life stinks some time!!

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Sunday, June 21, 2009

Weekend Fun

We went to my sisters house for the weekend again and it was a lot of fun!! We went swimming (Logan's First Time!!) and it was very stress releaveing!! We are still over whelmed still have no house Carl is still laid off and we are so worried but it was nice to forget about all that for a while and play with the kids! Please Keep Praying we really need it!! Thank you! I hope every one had a awesome weekend and Happy Fathers Day!! We are enjoying the day at home with our baby's!!

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Wednesday, June 17, 2009

Not So Good News *Sigh*



Carl was laid off today. They had a meeting at work and told every one they will be laid off at lest until August. This is not good news for us right now.We are trying to find another house and are so over whelmed with it all!!I don't understand really I don't?God says he wont give us more then we can handle but this sure is a lot to handle all at once!! I have faith we can get through this and grow from it but I am not looking at or for the big picture as of right now. I am just getting by day to day as it is I feel like I am going to have a break down at some points.*Sigh* I don't know what we are suppose to do.We have 4 kids we can't be homeless.This is hard and I don't like the way I feel at this moment in my life I have never failed to provide my children with all they need and this time it seems I have. I am just so confused and scared. Where will we end up? I am going to try not to stress out to much and believe that it will all work out. please pray that it all works out for us we really need it and Thank you All!

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Just Life

We had a fun day with the kids yeasterday.It took some of the stress away. We feed the fish and went and played for the day. We needed it so badly with everything that is going on in life as of now.It was really great.

Well I talked with the geneticist and she said because of this gene testing he already had it probably rules out MRMT but wanted to see the pictures because it could be something else that needs to be taken care of.

We still have not found a place and are getting pretty discouraged and dispirit!We really need to find something Any thing soon. I am hoping that god will show us his plan soon and give us the incite we need to get by.

I do not want to live with my mom her house it to small and we don't get along when I live there so I am Praying we find something before that would have to happen! Please Pray for us we really need it.


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Monday, June 15, 2009

For My Daughter

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Let down again.

Well we can't buy a house because we have 1400 dollars in debt we have to take care of. So the search go's on and on and on! Why can't we find anything we are good people we pay are rent!! Ugh it is so so frustrating I have a huge headache now and I have no idea what we will do!! I am so so stressed!! I hate being in this ordeal We have never been where we are now we have never worried about where we will go or if we will be out on the streets. I am so scared and every time there is hope something happens and we have to start all over again. We just need a break something to give so we can have some where to live. I have been searching for months.I am so so stressed. I don't want my baby's not to have a home. Why must this always happen to us?? Please Lord Help us find a home we can afford and will be able to stay in!!Please Pray for us we need it!




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Sunday, June 14, 2009

Hopeful We Will Get Good News Tomorrow!









Well we were gone all weekend and it was fun hanging out with my Big sister Susan's and her family(Thank you Susan and Steve for having us over and sorry my kids terrorized your house!!) Well we were gone Friday the Leander for the house we are trying to get called and said they had good news for us but of course we didn't get the message till today and is Sunday so I will call tomorrow to see what the news is please pray that it is indeed good news because we have to find something soon and if we don't we have to move in with family and no one has the room for us.

My sister is leaving us she has decided to go back to her mother right before the hearing!It's nice that we did all that work to get everything set up and now she doesn't want to be here anymore!! Oh well it opens more options for housing i guess though I will miss her as I am sure the kids will to.

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Saturday, June 13, 2009

Testing

(the date on this picture is wrong it was taken today!)

After speaking with Liam's mother(the boy from the worlds strongest toddler)Dana and showing her pictures of Bryan I have decided to pursue testing for Bryan because Dana said that Bryan Looks Very slimier to Liam.I really think he has something like Liam. I have never seen another kid that looks like Bryan and when I watched the TLC show I was contently saying that kid looks like my Bryan!! Whats even cooler is that Liam go's to the same genetics as Bryan so that means that I do not have to have a referral because Bryan is already a patient remember Bryan's doctor dose not think he has it(peds really don't know)So I am going to all on Monday and see. I am just happy we finely found some one who looks kind of like Bryan in body style (besides his dad)Thank you Dana If you read this for taking the time to talk to me and look at my son's pictures!!

I will write more later on I am at my sisters at the moment!



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Thursday, June 11, 2009

I hate Bugs!!


Another dumb bug bite on the forehead=huge itchy bulls-eye bump=a really mad Screaming Logan all day!! They think this one is a spider bite. His doctor told me to avoid having him bit at all coast! Ummmmmmmm Its on his face what am I suppose to do but a bag on his head? Or a mask? I put bug spray on but not all over his face yuck!!

We are still seeking a house every thing keeps falling through! So Please if you can keep us in your prayers that we will find something soon our lease is up on the 15th!I am so so stressed!


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Bryan

we took him in they said that he is normal just has extra muscle mass but didnt watch him flex or anything so I am going to bring in the pictures in and see what they say about it then. So I don't know. I would still like to know if anyone's 5 year old's Has a back like this?Thank you!

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Please tell me if this is normal??

Please some one who has a 5 year old or see's a lot of 5 year old's can you please tell me if a 5 year old's back looks like this normally?? I mean none of my other boys backs ever looked like this but I don't know?? Please if any one knows contact me??Its kind of blurry sorry he was moving!

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Myostatin-related muscle hypertrophy

I think my son may have some form of this and would love to get in contact with some one who knows any thing about this.

There is a little boy in my home town with this and my sister brought it to my attention and asked if Bryan may have it because of his muscle mass strength and the fact he has no fat on his body.

So I looked it up and he may very well have this in a lesser form then that other boy. As I have said Bryan has tremors problems with fine motor skills and Gross motor skills and a chromosome abnormality. Could this lesson his strength a little? His muscles look just like this boys and he has had abs since at lest 2. He can do 5 pull ups (I only caught him doing 2 on tape)and a few chine up's.Bryan could swing from a monkey bar for over a minute hanging on with just his hands while I pushed him at age 1 with out any problem!.

We have called him our little X-Men since he was around two because he was so strong and had super stretchy skin!!We (my family and I)Have always joked around that he is a little body builder and stuff!I think I may ask his doctor.

Collin and Joey show no signs of this but I don't know about Logan but I do not think so.

Bryan's "real" Father is built like him with no fat what so ever so I am wondering if he is where Bryan got it if he has it because it is hereditary and My other kids don't have the same father but there are no records of that.

From Wikipedia, the free encyclopedia
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Myostatin-related muscle hypertrophy (or myotonic hypertrophy) is a rare genetic condition characterized by reduced body fat and increased skeletal muscle size. Affected individuals have up to twice the usual amount of muscle mass in their bodies. They also tend to have increased muscle strength. Myostatin-related muscle hypertrophy is not known to cause any medical problems, and affected individuals are intellectually normal. The prevalence of this condition is unknown.

Mutations in the MSTN gene cause myostatin-related muscle hypertrophy. The MSTN gene provides instructions for making a protein called myostatin, which is active in muscles used for movement (skeletal muscles) both before and after birth. This protein normally restrains muscle growth, ensuring that muscles do not grow too large. Mutations that reduce the production of functional myostatin lead to an overgrowth of muscle tissue. Myostatin-related muscle hypertrophy has a pattern of inheritance known as incomplete autosomal dominance. People with a mutation in both copies of the MSTN gene in each cell (homozygotes) have significantly increased muscle mass and strength. People with a mutation in one copy of the MSTN gene in each cell (heterozygotes) also have increased muscle bulk, but to a lesser degree.

Article about the other little boy:
http://abcnews.go.com/Health/MedicineCuttingEdge/story?id=7231487&page=1


Pictures of My Son Bryan at 5 years:









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One more thing Susan (my sister) got tested for the chromosome abnormality and has one to as do(we think it is the same one she has to have more tests). I,My son's Collin and Bryan and her son Adrian! What is up with our family!!?? She will see the geneticist soon!I am hoping my other sister and my brother will be tested along with my niece and parents.I am really having second thoughts about having more children.


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Joey and Collin








I fell I have been neglacting Joey and Collin latly on my blog so I will write a little about them.

Well they both did awesome on their report cards!! Joey was the highest reader in his class at the end of the year!

Collin has come such a Long way he got 3 reading awards and is going to 2nd grade next year!!Yay!

Collin is camping right now and Joey is at his dads house. when we move Joey really wants a dog. I love my kids so so much they are great and I don't care what and one says they are good kids!! Prefect to me!!

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Wednesday, June 10, 2009

My Son Remembers..........





Bryan was 3 when Sonya passed away and I was playing a song that we played at her service and he looked at me (he is now almost 6) and said hey that's Sonya's Song! I remember the doctor took her and we buried her in a big hole in a rock(Vault.) He said (just a few min ago) That we should go get her that he cried for her and miss's her so much. I am crying now I did not know how much he remembered or how much Losing his sister affected my 3 year old(at the time).I remember the day we lost her Bryan Looked at the doctor and asked why they took his baby?I am so Heart Sick for Bryan. I tell him she is in Heaven and we will see her again some day and he says I know Mom But I Miss Her!I thought he was to young to know but I guess since he was with me all the time and was there when we got the news and there for the u/s and there when we almost lost her the first time and I prayed with him to save her and he saw me screaming and dieing emotionally that he went through it all with me that is was raw and real to him just as it was it me. I tried to hide my pain from him from every one but I guess he saw through my vial to the person below. I remember when I found out Sonya would die he would come up to me and lay his head on my belly and say the baby ok today mom the baby ok feel her mama feel her in there(Which meant I feel her in there he was 3 and not talking well). Then when we lost her and I would sit and cry he would come up and say mommy sad mommy sad mommy it ok be happy? Baby die Mom Baby Die?? And I would say yes mommy's sad because the your sister the baby died.Be Happy Be Happy mama Baby in Heaven?Yes baby's in heaven sweetie.Oooh I love you mama miss baby miss baby.

Then he was there with us when they told us we would lose Logan he was 4 and he said don't worry mommy the baby will be ok and I said I hope so!He was right!

When we told him Logan was a boy he cried and said he wasn't he was a girl! He wanted him to be a girl so bad because then he would have his sister. He was convinced Logan was a Girl up untel he saw his penis!! Then he cried as he held him and I cried to and he loved him so much he didn't want any one to hold him or take him from me he was sure the doctors killed his sister and thought the same would happen to his new brother!When we came home with him he was so happy.Then that day in September when Logan was hospitalize and Bryan had to go home with out him he screamed!He thought that if he left he would never see his brother alive again! None of the other boys have ever shown so much emotion in it all! It makes me cry.

How could some one so Little Remember for so Long??


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